Update: 28 Weeks

Emilie is now 28 weeks old. The doctors are hopeful that she has passed through the most fragile point of her journey. The next step in Emilie’s care is to prepare her for oral feeding. We’re hopeful this will begin tomorrow. Her surgery on Tuesday to place a small reservoir in her brain was successful. This will allow any extra fluid on her brain to be manually drained. On yesterday the doctor removed 14ml, and today another 12ml. He will continue this process for the next several days.

While the reservoir will alleviate cranial pressure and stabilize her breathing, it will not address the bleeding that has already affected her brain tissue.  

photoAllow me to explain (in layman’s terms). The condition of Emilie’s brain is similar to that of a bruise on your arm. A bruise is the result of broken blood vessels in the tissue. These broken vessels result in a blackish/ blue mark under your skin that is sensitive to the touch. Over time your body will reabsorb these broken vessels and the bruise will go away.  The same thing has essentially taken place with Emilie, however the bruise is in her brain. As a result of the trauma she experienced due to childbirth her blood vessels, which are highly fragile, ruptured and left bruises on the brain tissue. However, unlike your arm, brain tissue is extremely sensitive because it’s the motherboard. Consequently, if it gets bruised, it does not easily recover. A level four bleed means there is significant bruising in her brain.

Further, once the blood vessels in your brain rupture they clog the drain in your brain that allows spinal fluid to drain. If this drain is clogged (just like your kitchen sink), everything backs up and overflows. Because the fluid cannot drain, it leads to an abundance of fluid on the brain, which produces hydrocephalus. Consequently, a reservoir (or shunt for larger babies) is placed in the brain that allows the fluid to manually be removed.

While we rejoice that the reservoir surgery was successful, we are fully aware that only the Lord can heal the bruised brain tissue. And so Emilie eagerly looks to Jehovah-Rapha, her Ever-Present Healer. 

29 thoughts on “Update: 28 Weeks

  1. Dear Seth and Holly, I am so very happy to hear that all went well yesterday. Hold to your audacious faith, keep praying your audacious prayers and keep trusting God for His outcome. Emilie Grace is precious in His sight. Much love to you.

  2. Church ever day !!!! What a blessing this faith journey has been !!!!! Thank you Jesus!!!!

  3. My sister sent down this same road. Born premature, blockage in her intestine, hydrocephalus, long hospital stay (Nov 17-Jan 8). Today she’s thriving even with issues along the way, they are minor in comparison to what she went through. Your road may seem challenging but giving God the wheel is the only way to travel. May God grant you His peace on the journey!

  4. Praise God from whom all blessings flow! Just keep trusting Him! He knows what He’s doing!! Take courage! Hold on!!!

  5. With all the prayers that are continuing to go up just remember only something good is about to happen continue to trust in god we love you all charmen and Celeste bell

  6. Seth, this is for you and Holly The Lord impressed me to share these words with you two – “The Lord will make a way for you where no one has been before, that which like a sea, threatens to drown you, shall be like a highway for your escape.” Charles H. Spurgeon

  7. Nothing is too hard for our awesome, powerful, great & mighty God! We have the blood of the Lamb to supernaturally & miracuously tranfuse and heal any broken blood vessels, bruises, and anything else. HE is faithful! 🙂

    Camille

  8. Sir, you are a special daddy! You can write a book about this incredible journey. God is truly working in this event! Your folk in Chattavegas haven’t stopped praying! Thy Will Be Done…

  9. All I Can Say Is That God Is Able. I Believe That, Otherwise I Wouldn’t Be Here…I’d Have Been Dead Years Ago. I Have Faith Your Little Girl Will Survive This Healthy And Normal. God Bless And Much Love.

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