Week One

Thursday April 11, 2013

  • Born 17 weeks early
  • Weighed 1.5lbs 
  • Her heart stopped upon delivery and needed resuscitation 
  • Right lung appeared collapsed 
  • Esophagus was undeveloped, ending in a blind sack 
  • Blood pressure was extremely low
  • Airlifted from Riverside to Anaheim
  • She’s placed on an oscillator which supports her lungs and breathing

IMG_5026

Friday April 12, 2013

  • Gained 1/2 pound
  • Ultrasound revealed level one bleeding on the brian. 
  • Discovered she has Patent Ductus Arteriosus (PDA) which is condition in all 24 week babies where the one of the heart vessels does not close
  • Blood pressure remained low
  • Oxygen levels in blood irregular 
  • Received one blood transfusion
  • Blood found in lungs

photo copy 4

Saturday April 13, 2013 

  • Her body is extremely swollen and bruised do to fragile state of her skin 
  • They placed her under a UV light to address bruises and jaundice
  • Blood pressure beginning to stabilize
  • Received second blood transfusion 
  • Oxygen levels in blood still very irregular 
  • Functioning on 100% oxygen (goal is 21%) 
  • Doctor gives her Surfactant to help keep the lungs expanded  
  • Blood found in urine
  • Blood sugar is abnormally high
  • Received transfusion of clotting factors to prevent further bleeding

Sunday April 14, 2013

  • IMG_5026 2Second ultrasound reveals level four bleed in brain.
    This type of brain bleed is consistent with 
    severe mental retardation and cerebral palsy. 
  • Doctor gives three options: 1) Maintain same level of care, 2) Maintain same level of care but do not resuscitate, 3) Remove all support and hold her while she dies.
  • Peripherally Inserted Central Catheter (PICC) Line is inserted into right arm
  • Functioning on 76.3% oxygen (goal is 21%) 
  • The church comes to hospital and prays!

Monday April 15, 2013

  • photo copy 2First stable night for Emilie since Thursday
  • Blood pressure stabilizes
  • Oxygen levels in blood stabilize
  • Functioning on 55% oxygen (goal is 21%)  
  • Holly discharged from hospital

Tuesday April 16, 2013

  • Levels remain consistent! 
  • Blood Oxygen levels improve 
  • Functioning on 39% oxygen (goal is 21%) 
  • Doctor informs us that on Wednesday they will perform 3rd ultrasound on brain… #praychurch 

61 thoughts on “Week One

  1. I am praying for Emily and your family.
    “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” John 16:33

  2. ”For I know the plans I have for you , declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29:17. God has a plan for Emilie. be encouraged.
    Doris

  3. sharing about baby Emilie Grace on every fb prayer page i’m on and facilitating. #exceedinglyabundantly God will do more through Emilie Grace’s story than you can even ask or think!

  4. Praying for you guys!! “Before I formed you in the womb I knew you, before you were born I set you apart; I appointed you as a prophet to the nations.” Jeremiah 1:5 — love, the Nate’s

  5. Nana Edmonds thanking God for all He has and is doing & all He will do. Praying to His glory & honor. He”s an on time God, yes He is!

  6. Seth and Holly,
    We just prayed and will continue to pray for your precious baby girl. We are also praying for you both, lifting you up before the throne of God!
    He STILL Reigns.

    Donald and Tamika

  7. God will continue to perform His miracles on her. I will put her in prayers, she will be healed of all health issues in Jesus name.

  8. Northern and Central California is praying for wisdom for the doctor, nurses, med techs. I wish I had an easy button to press to make it all better. I am amazed that the faith in God and his Son displayed by you two in all of this.

  9. You’re in my continued prayets Emilie Grace! The Lord didn’t bring you this far to leave you… Hang in there parents. God is a good God and his promises are true! He promised he would never leave you or forsake you. Love you all!

  10. We have been in prayer daily for her and the family. Our youngest, Korrin was 3.9 lbs and overcame all challenges. We pray Emilie will too! 🙂

  11. Seth and Holly, we are still praying that God will continue to work a miracle, and that little Emily will pull through and be fine.

    God is with you, and this did not catch Him by surprise.

    Donnie

  12. Seth and Holly They that wait on the Lord shall renew their strength…Wait on Him…HIS will and timing is perfect

  13. Cast all your cares upon Him. Jesus knows and He cares. I will be praying for your family. God is able to do exceedingly and abundantly above all we could ever think or ask.

    Remaining Faithful,
    Jill

  14. I am so sorry! My prayers are with you and your family! My son was born weighing 3 lbs. Hang in there. God has a plan… always for Good to those who who love him and are called according to His purpose!

  15. God saw Sunday, April 13, 2013 before the world began. God saw that the Doctor would give you Holly and Seth, 3 options, one of which you would have to decide to hold your baby in your arms until she passes away. God also saw his faithful saints Holly and Seth subtly remind the medical team of the 4th option, that was never presented to them. The 4th option was for believers around the world to call on our father which art in heaven! The church praying is indeed the 4th and most powerful option. We are inspired by the Yelorda family, through Emilie Grace about this 4th option. Today the Ramathe’s continue to rely on option 4!!!! BE ENCOURAGED as you continue to ENCOURAGE the WORLD!

  16. Pastor Seth and Holly,
    We have and will continue to pray for little Emilie Grace. It is such a relief to be able to cast our cares on a God who works miracles. Already Emilie Grace is living proof of that! Be encouraged!

  17. Pingback: Week One | adjustedsails

  18. Angie and I will continually hold Emilie Grace in constant prayer knowing that He can and will answer all our prayers. We look toward July 30 as the day she will go home with Mommy & Daddy.

  19. God is too wise to be mistaken and God is too good to be unkind… Trust His heart! Praying for you as you walk a very difficult but familiar road. Jesus Loves you and He Loves Emillie Grace more than you do., so trust His heart.. We pray with you.
    The Ikners STL

  20. Seth and Holly, We are praying for you and that precious baby- a miracle from God!
    Complete confirmation that God still moves mountains…. He specializes in impossibilities. May he continue to strengthen you guys through this journey of faith. Praying for life and total healing for Emilie Grace in JESUS NAME!

  21. I know for sure that God is able! Our son was born with pulmonary hypertension in the lung, immediately put on ventilator, hours later ECMO (he also suffered brain bleed), did multiple blood transfusions and over 40 surgeries since. It is nothing but a miracle that he is alive and well today. Doctors declared he would be retarted. He is now five and a half and is functioning well above his age academically. And though we still don’t know when he will be able to live without his trach tube, we are certain that the same God who brought him through his circumstance years ago, is able to do anything, in His time. He is the God of the impossible. God is able to do more than we can imagine or think. I have grown to believe that my God is not limited to what doctors can do because indeed He is the great physician. We hope Holly is doing great and we pray for improved health for your precious baby girl. Just believe… and it will happen :-).

  22. God is in total control! Emilie Grace will be a testimony to His Power! He has already given His angels charge over her! Amen!

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