Today Emilie cried. It wasn’t her first time, but for some reason it felt different today. Because she’s still intubated it wasn’t a traditional cry with tears and screams, but this cry nonetheless pierced my spirit. The nurse and RT turned her on her back and were replacing the tape holding her ET tube in place. While this shouldn’t have been a traumatic experience, today Emilie was not having it. She turned tomato red and her face scrunched up as though she was preparing to belt out a scream that would acutely reflect her displeasure. With no sounds coming out, her face began to grimace as her eyes, which were wide open, slowly paced back and forth. She was searching for someone to help.
As her mother and I stood over her isolette helpless and broken, we placed our hands on her softly and sang this gently song:
Peace is when the wind stops blowing
Peace is where the sun is showing
Knowing that my Daddy’s here
God gives me peace
Peace, peace
I think I understand
Peace, peace
Is holding Jesus’ hand
Peace is when I’m tucked in bed
When my mommy pats my head
Peace is smiling while I sleep
God gives me peace
Peace, peace
I think I understand
Peace, peace
Is holding Jesus’ hand
Emilie Grace 
joining u guys in prayer for emilie grace’s peace! for your peace, for holly’s peace. may the peace of God surpass your understanding at this very moment. may the cries that pierced your soul, instead be wrapped in the peace of God’s presence. our family will pause to pray.
Dear Seth and Holly, as I read your post, this scripture came to my mind: The LORD gives strength to his people; the LORD blesses his people with peace. PSALM 29 : 11. May you and Holly be strengthened and may you experience His peace. Remember, He is holding you, Holly and precious Emilie Grace with His righteous right hand. Moment by moment you are kept in His care. Oh to be kept by Jesus. Much love to you.
Dear Heavenly Father, Thank you for her mommy and daddy who are Faithful, Loving, Kind and Trusting You through it all. Give little Emily Grace peace that passeth all understanding. Help her to feel comfortable its only for a little while and then everything will be alright. Help Emily to fight and to continue to hear her parents prayers and song for peace and comfort. In Jesus name Amen.
Sweet Emily Grace, I am blessed and honored to continue to pray for her complete healing.
Emily is letting you know she is here and is not happy with being disturbed! It really was different, she is now strong enough, well enough to give her opinion, another sign of God’s Grace and Blessing. What a Wonderful God we serve!
May Emilie feel peace and receive strength from God through her faithful and trusting parents! God is with you. Continue to wait on Him.
This made my day!! That reflex means so much, she is reactive to discomfort that is an indication of brain function…May The Lord continue to bless Emilie Grace.
What awsome parents you are to her! She is blessed!
She is talking to you and you are talking back to her keep singing. Do you have one if those womb sounds devices?
Pastor Seth, as I joined you in prayer online yesterday when you prayed for Stacy, I saw God’s hand healing baby Emilie as well. This emotionally draining experience you are going through is reflecting a powerful man of faith who has inspired us to know that we serve a powerful God who is able to heal today as he did when he walked the streets of Galilee. There is nothing hard for Him. Emilie’s life will be a testimony that will lift up the name of Jesus and Glorify God.
I used to sing Makayla to sleep with that song, I would always end up falling a sleep with her. Very soothing.
Just know God is bottling up every one of Emilie’s tears. He is in control. There is a fight in her. It is because of your prayers she will be made whole. Continue to place her in God’s hands. We are still praying with you. Thanks for your encouraging words that u r providing to us as u are going through. You can only win and come through this with God.